Raising Awareness for Radioulnar Synotosis
Starts With You.
Our Mission
This project was made in order to raise awareness about the rare condition of radioulnar synostosis. Through informative resources and a supportive community, we aim to empower those affected by this disorder, fostering a sense of belonging and resilience in their journey towards improved quality of life. Together, we strive to make a meaningful impact, advocating for solutions that a patient may face, better treatment options, and a brighter future for individuals living with radioulnar synostosis.
What is radioulnar synostosis?
Struggles and Solutions
With radioulnar synostosis comes obstacles that one must surpass to live a fruitful live.
Patient Stories and Resources
FAQs
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Radioulnar synostosis is not a progressive condition, which means it does not normally deteriorate with time. However, depending on how effectively an individual adapts to the disease and finds proper treatment, the impact on daily activities and sports may vary.
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Radioulnar synostosis may have a hereditary component in some cases, especially when it is present at birth (congenital). It does run in families, but not always. However, the particular genetic components and inheritance patterns remain unknown.
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Excision of the fused bone, resection of the synostosis with the interposition of soft tissue or a prosthesis, and radial head replacement are surgical treatment options for radioulnar synostosis. The procedure chosen is determined by the individual's specific case and the surgeon's recommendation.
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Yes, while radioulnar synostosis usually affects only one arm, there have been situations where both arms are afflicted. The illness might manifest differently in each arm, and the severity can range from side to side.
Contact us. We would love to hear from you.
nickveliz4@gmail.com
(831) 596-1935
Salinas, CA